This is a story made up by Maggie.
What is it about?
"Pappy loves me."
"Pappy loves me all my tator holes and Nanny. They were in a bush in the water.
Were they Mermaids?
"Yep, they were Mermaids and then Zaachi was a Mermaid. (Z says he would be a Merman). Them got a shark and the shark came and eat them....."
I don't like this story
"The story goes Pappy said .....nokdjvoejopgroh"
I don't understand.
Z says, "Me too and I am usually the Maggie translator."
What was your favorite part of the day.
"It was good and Pappy come over our house. Please, come to our house. "
"I made a triangle with Bucca's legs.
Tell me about Bucca.
He was just laying down and he barked at me. "
What can you tell me about Bucca?
"He likes me to make a circle around him.. He likes everything. He likes a triangle around him. I rolled it around him. He likes to play with me and go around in circles. we were playing with a orange outside, like a ball and Bucca got it and it was crazy. "
What's your favorite thing to do?
"Nothing. I like to play wit Bucca."
Now she is trying to put a sticker on the dog.
Enough for now, I can't keep up with her.
Susie
Wednesday, February 24, 2010
2nd Blog entry by Z Man 2-24-10
So, What do you want to talk about today?
"What I did today."
"Well, I got up, hoping that my MRI would come clear. When I got there I had to wait and when I was in my MRI I fell asleep. When are we going to Philly? To Aunt Jo Jo's? ......
Umm, ( he groans in pain waiting for the pain meds to kick in).......
I don't think I can continue to blog today Susie.......
I have to keep on moving forward.......
I just need to rest right now. I had a long day."
Ok, we don't need to do this now.
Do you want me to post this?
"Yes, Hope Pastor Louis is on."
"What I did today."
"Well, I got up, hoping that my MRI would come clear. When I got there I had to wait and when I was in my MRI I fell asleep. When are we going to Philly? To Aunt Jo Jo's? ......
Umm, ( he groans in pain waiting for the pain meds to kick in).......
I don't think I can continue to blog today Susie.......
I have to keep on moving forward.......
I just need to rest right now. I had a long day."
Ok, we don't need to do this now.
Do you want me to post this?
"Yes, Hope Pastor Louis is on."
Sunday, February 21, 2010
Z Mans first blog entry
"It's a beautiful day out. Why did the chicken cross the road? I have cancer and I am not very happy. Why did this all have to happen to me?"
What went through your head when the Dr.'s told you the news on Friday?
"Well, I thought, how could this happen again? "
What helps you get through each day?
Marc says a good attitude and Z man agreed.
"Singing."
What do you like to sing?
"Songs about the Lord".
What is your favorite song?
"Ride the Mighty High"
Why is that your favorite?
" Because I like when they say, Ride the mighty high!"
What else do you think can help you through this?
"Video games and TV and music and love and care, TLC."
What do you think is going to happen next?
"I'm gonna go through surgery and have Chemo again."
Why do you think that?
"Because it could really be serious in my lungs"
Why do you think it is in your lungs?
"Because it could have builded up over a month"
Your scan was clear the last time. What emotions do you feel?
"Worriness and sadness"
So, if you could say anything to someone who was going through a hard time, what would you tell them?
"Keep trusting the Lord."
Why do you say that?
"Because the Lord can do anything for you."
We love you and hope you know that you are never alone. We are gonna go through this journey together. I think that blogging your journey may help you as you process what has happened in your life and what is currently happening. Plus, others can learn and grow with us as we grow through this situation. Does that sound like a plan?
"Yes"
When you came home from finding out what did you tell me?
"I don't totally remember"
You told me that you were depressed but "Look at the bright side, I can touch more peoples lives." Do you remember that?
"Yes"
How do you want to touch their lives?
"By teaching them more about the Lord and that our God saves."
Is there anything else that you want me to type and include in your first blog entry?
"No."
Ok, that is it for now. Hope that anyone that reads this will continue to pray for Z and our family as we walk forward with the Lord in this journey. We need miracles and we know that God can do anything. We place our trust in Him.
What went through your head when the Dr.'s told you the news on Friday?
"Well, I thought, how could this happen again? "
What helps you get through each day?
Marc says a good attitude and Z man agreed.
"Singing."
What do you like to sing?
"Songs about the Lord".
What is your favorite song?
"Ride the Mighty High"
Why is that your favorite?
" Because I like when they say, Ride the mighty high!"
What else do you think can help you through this?
"Video games and TV and music and love and care, TLC."
What do you think is going to happen next?
"I'm gonna go through surgery and have Chemo again."
Why do you think that?
"Because it could really be serious in my lungs"
Why do you think it is in your lungs?
"Because it could have builded up over a month"
Your scan was clear the last time. What emotions do you feel?
"Worriness and sadness"
So, if you could say anything to someone who was going through a hard time, what would you tell them?
"Keep trusting the Lord."
Why do you say that?
"Because the Lord can do anything for you."
We love you and hope you know that you are never alone. We are gonna go through this journey together. I think that blogging your journey may help you as you process what has happened in your life and what is currently happening. Plus, others can learn and grow with us as we grow through this situation. Does that sound like a plan?
"Yes"
When you came home from finding out what did you tell me?
"I don't totally remember"
You told me that you were depressed but "Look at the bright side, I can touch more peoples lives." Do you remember that?
"Yes"
How do you want to touch their lives?
"By teaching them more about the Lord and that our God saves."
Is there anything else that you want me to type and include in your first blog entry?
"No."
Ok, that is it for now. Hope that anyone that reads this will continue to pray for Z and our family as we walk forward with the Lord in this journey. We need miracles and we know that God can do anything. We place our trust in Him.
Saturday, February 20, 2010
I don't know what lies ahead, but what I do know...
I do know that God is faithful
I do know that he will not give me more than I can bare
I do know that we are more than conquerors through Christ
I do know that he works all things for our good
I do know that he has a plan for me
I do know that the trying of my faith works perseverance
I do know that his yoke is easy and his burden is light
I do know that I can do all things through Christ that strengths me
This has been a trying week. Last weekend I was frustrated with Z because he seemed to be going backward with walking again. I thought he was making up excuses, till I looked at his leg before school one morning and realized something didn't seem right with his right (good) leg. I talked to the PT, I talked to the Dr. all seemed to think he had just over done it or something. The next day I called the Dr. again. He seemed to be shaking a lot and his knee didn't look right. The Dr. agreed to look at it and Marc took him in on Friday to get an Xray. Z has cancer again. Dr. said that in his twenty-some years of practice he had never seen this kind of cancer go to another bone. Marc came home and told Xavier and I and then I proceeded to go get Jayden and tell her. How could this happen? Why him? He has been through so much already....I DON'T KNOW WHY, but I DO KNOW....God does. I DO KNOW THAT HE WILL BE GLORIFIED. I DO KNOW it will not be easy.
So, far the kids seem to be handling things well, including Z. He is trying to look on the bright side of things. He was telling our neighbor about what was happening and he broke out in song, "He'll give you Hope for tomorrow, Joy for your sorrow, strength for anything you go through" I helped him finish, "I know the plans I have for you". We stood not really knowing how to respond. I began to think...."This kid no matter what happens is bringing glory to God and I want him to be able to share it with others." So, I asked him to blog with me as we go through this JOURNEY of uncertainty. The first thing he told me when he came home from the clinic after discovering the cancer was back was, "I feel depressed, the cancer is back again. But think of the bright side, I can touch more peoples lives now."
I DO KNOW THAT GOD WILL WALK WITH US.
I do know that he will not give me more than I can bare
I do know that we are more than conquerors through Christ
I do know that he works all things for our good
I do know that he has a plan for me
I do know that the trying of my faith works perseverance
I do know that his yoke is easy and his burden is light
I do know that I can do all things through Christ that strengths me
This has been a trying week. Last weekend I was frustrated with Z because he seemed to be going backward with walking again. I thought he was making up excuses, till I looked at his leg before school one morning and realized something didn't seem right with his right (good) leg. I talked to the PT, I talked to the Dr. all seemed to think he had just over done it or something. The next day I called the Dr. again. He seemed to be shaking a lot and his knee didn't look right. The Dr. agreed to look at it and Marc took him in on Friday to get an Xray. Z has cancer again. Dr. said that in his twenty-some years of practice he had never seen this kind of cancer go to another bone. Marc came home and told Xavier and I and then I proceeded to go get Jayden and tell her. How could this happen? Why him? He has been through so much already....I DON'T KNOW WHY, but I DO KNOW....God does. I DO KNOW THAT HE WILL BE GLORIFIED. I DO KNOW it will not be easy.
So, far the kids seem to be handling things well, including Z. He is trying to look on the bright side of things. He was telling our neighbor about what was happening and he broke out in song, "He'll give you Hope for tomorrow, Joy for your sorrow, strength for anything you go through" I helped him finish, "I know the plans I have for you". We stood not really knowing how to respond. I began to think...."This kid no matter what happens is bringing glory to God and I want him to be able to share it with others." So, I asked him to blog with me as we go through this JOURNEY of uncertainty. The first thing he told me when he came home from the clinic after discovering the cancer was back was, "I feel depressed, the cancer is back again. But think of the bright side, I can touch more peoples lives now."
I DO KNOW THAT GOD WILL WALK WITH US.
Monday, February 1, 2010
What I have learned today.
Today, Maggie told me that God took her heart out. LOL! Funny how they think at this age.
Ok, today had a few challenges. One challenge was the DETOX. I learned to never plan one when you are about to have your monthly because cravings are worse it seems and you feel irritable to begin with.
Second, I learned that I have a very understanding husband (I already knew that but I was reminded how understanding and supportive he is today). I was grumpy, tired, cold and hungry (not a good combination) and he was patient and tender and sent me to bed.
The third thing I learn was that, you always have to have room for a change of plans. Why sweat it, just roll with the punches and keep praising. All the detoxing plan when out the window when at 5:00pm I checked on Zaachi (who was sleeping on the couch) and found him burning up with fever. Suddenly the adrinilin starts kicking and the calls to Dr.s are made. He had a fever of 104. This was very alarming with his condition. Marc and I ran him to the ER, where he still is at this time, so they could begin fluids and antibiotics. Marc is taking 1st shift and I will take tomorrow while he is at work. We teared as we realize that this may be a rough few days or even months, depending on the cause. Life had just seemed to calm and we had been enjoying the calm. SO for dinner we all had McDonalds. Bad choice but we had coupons.
I spoke with someone earlier and they seemed to think maybe we had taken on too much and that there comes a time when one asks, Am I really living life? The life Marc and I have chosen has taken a toll on us. There have been times when I feel I have nothing left to give and if one more thing goes wrong, I will crumble. Well, those are times that we see that in our weakness his strength is perfected. Often times, I come to that point and realize that "I can not do this!" But "He can!" I imagine him watching us struggle with the weight life baring down on our shoulders when he is beside us wanting patiently for us to allow him to be yoked with us and carry it for us.
Some may believe that God calls us to a fun, happy life eating Bon Bons, but I don't see that picture at all in the Word. I see Joy and Peace in the midst of storms and trial and tribulations. In James it say to count it all joy when these trials and temptations come, because the trying of our faith works perseverance. So, for me I will stand and know that he is God. No need to try and avoid the storm, I must face is head on and learn and grow. He say in the Word that he won't give us more than we can bare. I choose the road less traveled, I choose the pain it may bring, I choose the joy set before me, because after all this life is" but a breath". I like to think of life as a starting point, but my real life, my treasure is in the Lord and the future we have reigning with him. Please don't get me wrong, I do enjoy life and I do love having fun, I just know that suffering is inevitable, why else would he say that we had to "Take up our cross".
One last thing. It is understandable why others may not understand your call and directive in life. I don't feel compelled to help those who struggle with addiction, but that doesn't mean it shouldn't be done. I felt with each of our children a call to be their parent but I can't expect someone who has never had that call, to understand. So, value what the other parts of the body are doing and do your part. We can only function as a healthy body, when we all do what we are individually called to do. By the way, I value you today.
I will keep you all updated on Zaachi's progress as we find out. The plan at present is to give him 24 hours of IV antibiotics and fluids and then reassess. As I have mentioned he had a full femur bone replacement and he has had an infection in his leg for over a year. Instead of doing another major surgery we have opted to have him on daily antibiotic. The Dr. said he may be on them for the rest of his life. For some reason, it seems that the infection may have flared up again. His leg Dr. is presently out of the country, so we will have to see what they recommend. Good news is that his chest scans came back negative for cancer. Praise the Lord!
Ok, today had a few challenges. One challenge was the DETOX. I learned to never plan one when you are about to have your monthly because cravings are worse it seems and you feel irritable to begin with.
Second, I learned that I have a very understanding husband (I already knew that but I was reminded how understanding and supportive he is today). I was grumpy, tired, cold and hungry (not a good combination) and he was patient and tender and sent me to bed.
The third thing I learn was that, you always have to have room for a change of plans. Why sweat it, just roll with the punches and keep praising. All the detoxing plan when out the window when at 5:00pm I checked on Zaachi (who was sleeping on the couch) and found him burning up with fever. Suddenly the adrinilin starts kicking and the calls to Dr.s are made. He had a fever of 104. This was very alarming with his condition. Marc and I ran him to the ER, where he still is at this time, so they could begin fluids and antibiotics. Marc is taking 1st shift and I will take tomorrow while he is at work. We teared as we realize that this may be a rough few days or even months, depending on the cause. Life had just seemed to calm and we had been enjoying the calm. SO for dinner we all had McDonalds. Bad choice but we had coupons.
I spoke with someone earlier and they seemed to think maybe we had taken on too much and that there comes a time when one asks, Am I really living life? The life Marc and I have chosen has taken a toll on us. There have been times when I feel I have nothing left to give and if one more thing goes wrong, I will crumble. Well, those are times that we see that in our weakness his strength is perfected. Often times, I come to that point and realize that "I can not do this!" But "He can!" I imagine him watching us struggle with the weight life baring down on our shoulders when he is beside us wanting patiently for us to allow him to be yoked with us and carry it for us.
Some may believe that God calls us to a fun, happy life eating Bon Bons, but I don't see that picture at all in the Word. I see Joy and Peace in the midst of storms and trial and tribulations. In James it say to count it all joy when these trials and temptations come, because the trying of our faith works perseverance. So, for me I will stand and know that he is God. No need to try and avoid the storm, I must face is head on and learn and grow. He say in the Word that he won't give us more than we can bare. I choose the road less traveled, I choose the pain it may bring, I choose the joy set before me, because after all this life is" but a breath". I like to think of life as a starting point, but my real life, my treasure is in the Lord and the future we have reigning with him. Please don't get me wrong, I do enjoy life and I do love having fun, I just know that suffering is inevitable, why else would he say that we had to "Take up our cross".
One last thing. It is understandable why others may not understand your call and directive in life. I don't feel compelled to help those who struggle with addiction, but that doesn't mean it shouldn't be done. I felt with each of our children a call to be their parent but I can't expect someone who has never had that call, to understand. So, value what the other parts of the body are doing and do your part. We can only function as a healthy body, when we all do what we are individually called to do. By the way, I value you today.
I will keep you all updated on Zaachi's progress as we find out. The plan at present is to give him 24 hours of IV antibiotics and fluids and then reassess. As I have mentioned he had a full femur bone replacement and he has had an infection in his leg for over a year. Instead of doing another major surgery we have opted to have him on daily antibiotic. The Dr. said he may be on them for the rest of his life. For some reason, it seems that the infection may have flared up again. His leg Dr. is presently out of the country, so we will have to see what they recommend. Good news is that his chest scans came back negative for cancer. Praise the Lord!
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