Make A Wish

We are so thankful for Make A Wish. They are sending us to Fl. for a week. We had planned to leave on the 21 but that got moved up to next Wed. the 10 as of today. I appears that they want to do the surgery before chemo this time and they want him to go on his trip first. The big problem is that his pain is increasing with every day. It hit me really hard today when I realized that with each day we have had to increase dosages. I haven't sent him to school for two days now. His school isn't handicap accessible. So, it causes aggravation in his leg to go up and down so many steps. Friday he is reading a story he wrote at a Coffee House at his school and we are gonna have a little party and make it his last day at McKinley Elementary. I hate that he has to leave his friends, but we don't really have a choice. He will be on home bound for awhile and then we will figure out what to do from there.
Life is changing so fast. Xavier is graduating in a few months, Jayden turns 16 in the fall, Maggie will be starting preschool, and Zaachi is changing with each day.
Tonight I had him sleep in Maggie's room (it is next to ours and on the 2nd floor) I read to them and then we prayed. Zaachi prayed that God would heal us all, emotionally, spiritually and physically. My heart melted, I can't imagine God's plan in all of this but that is not for me to question. I choose to trust, I choose to Praise him, even when I don't understand him. "God he glorified in my son."
I don't know what tomorrow will hold. I have a long list of calls, paper work, faxes on top of taking care of the kids while also packing.
God help me prioritize and get it all done.
We will have rooms to move, a chair lift to put in and carpet to pull up when we return.
If anyone wants to be involved we welcome help. We know that this is bigger than us. CHOP showed us a web site that helps communicate his progress and also gives a calendar to help coordinate volunteers. The site is secure. So if you would like to get involved or just follow his progress just send me your email address and I will send you an invitation.

Thanks