Both kids are asleep as should I be. Yes, Maggie is staying over with me tonight in the hospital with Zaachi. We came around 2pm and she did very well until it was time to go to sleep. She was really pushing buttons.....grrr. She was being a typical 3 year old. Zaachi was having some stomach discomfort but seems to be resting well now. I am trying to keep all these communications sites up to date so that all our wonderful friends and family are informed. Today Xavier, Maggie and I went to church and during worship I couldn't hold back the tears. It didn't help that the guy who was leading worship reminds me of my baby brother, whom I miss a lot rite now. But it is helpful to cry, there is such a release. The kids are fighting with feeling down and overwhelmed, but we are trying to hold them as close as we can. God has been faithful and has provided a way for them to go to a weekend retreat with North East Assembly. Our friends Luis and Kirsten pastor there and their church has been so embracing in the past few years. Kirsten and Luis have been a "landing pad" when we have been in Philly at CHOP. What amazing people, they love us, but what really blesses us is that they love our kids as much, if not even more.
Looks like we will also be able to send Xavier to Convention. God sees all of their hurts and is providing encouragement for all of them. We are trying to make everyone's rooms nice so that during this journey they have a nice place to retreat to when needed and feel comfortable.
Today a few people from Epic came to visit as well as Zaachi's PT. Then this evening Mrs. Heidi came baring video games and more Pop Tarts. Grandma Eve and Pop Pop Pop Tart also brought a few meals and a HUGE box of Pop Tarts. We have a large variety at this point.LOL SO much love!!!!! My kids and Marc and I feel so embraced......... God is faithful. I write all this because I want all to see God's hand is at work. I don't believe for one moment that God did this to Zaachi, I believe we all have frailties in our bodies due to the fall. Things like this are inevitable but he is a healer, he is a provider and is our Savior. Now, he can take what life has in motion and turn it around and use it to make us stronger, or heal us. But I will trust....trust that he will walk with Zaachi. There is nothing that can separate us from the love of God. I pray that it is in his will to give my son a long life, but I know that all of our days are numbered and again......I must trust. His ways are higher than my ways and his thoughts higher than mine.
Good night.....Trust....just trust and obey.
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