Update

Zaachi had a successful leg surgery on Tuesday,the cancer was taken out and part of his femur and his knee were replaced.

We had hoped to leave the hospital today but his pain was still too great to manage at home. We are hopeful for tomorrow to get him home. I think he will do better at home where his friends can come by and be with him. We meet with the lung surgeon on Monday to discuss the removal of the tumors in his lungs. We hope to get a date on the calendar soon.
Yesterday Xavier turned 18, WOW! He has so much going on right now with graduation coming up, getting his license, trying to by a car, college......I am so proud of the young man he is. I know that God has a plan for his life. He told us that he wants to be an Emotional Support Teacher.
Yesterday was an emotional day because I wanted to be with him but could only see him briefly because I needed to get back to Zaachi and Marc. I think I was on the verge of tears all day. So many things on my mind with all the kids going through each of their own struggles and feeling torn back and forth with Zaachi in the hospital. Marc and I have a system - we alternate staying with Z for a 12 to 24 hours, while the other holds the fort at home. Being in Philly makes it a little more difficult because one of us is with Mag and the other is with Z and the older two are mostly on their own. Poor Jayden is probably feeling left out, Xavier is graduating and had a birthday (Party is on Sunday at 6pm at our house), Z is in the hospital, Mag requires a lot of care due to her age and then there is Jay. I tried to let her know how much I miss her. I think all six of us struggle emotionally when our normal routine is disrupted by the urgency and the seriousness of Zaachi's condition, which requires us to be at the hospital a lot.
I took Mag to the Please Touch Museum today and she loved it, I only wish I were more energetic with her. She was in the shopping area and peed herself. I told a staff that we had a, "clean up on ail four". Kids must do that a lot because he didn't hardly even react. Oh, I must tell you what she said yesterday. Maggie and I were in the van and she said, "My butts getting out, Mom. My butts getting out." She was moving around in her buster seat (just graduated into it last week). I tried to figure out what she was saying or talking about. I said, what is wrong with your butt and she told me that her pants were too big and now her butts getting out. Her pants had come down some when she had sat down in her seat. I thought that was so funny. She also told me that she didn't want me to drive, she wanted Daddy to drive because he drives better.

I should go to sleep now, I have been feeling so drained this week physically and emotionally. I had hoped to take Maggie to a free Lori Burkner concert tomorrow for her Birthday but we will have to see how Z is doing. Marc is in Allentown tonight with Mag and Jay. He is playing in a golf tornament with Mr. Kerns at 8 am. The tornament is to raise funds for the school and also to help with Zaachi's needs. We had hoped to take Zaachi but there is no way we will be home in time. I just hope we get home in time to go to the store and get everything for Xavier's Party. LOL! Crazy, this life, but I love it.
Zaachi said to tell everyone that he misses them and hopes that he can come visit soon and Goodnight.